The only way this work of fiction could have hit any closer to home, would have been if my daughter-in-law wrote it herself. Faith Hope, mentioned many times previously on this site was a living, breathing Angel and she suffered from the very condition, Holoprosencephaly, which afflicted the child in Beccah Beushausen’s warped imagination.

I’m dumstruck, angry, confused and saddened by this farce, and can only sit here and wonder what exactly this did for Mommy Dearest. Did the attention make her feel better about herself while she was busy emotionally robbing people. Did it make her hurt less for her own personal losses earlier in life.

I don’t think its possible for me to care any less for her emotional state or her losses.

If you went through anything even close to this before in your life, why in the name of God would you put yourself through it again by way of lies?

When Faith Hope was born and throughout the pregnancy, our family came together in ways I never dreamed posssible. We were blessed with 2 1/2 months with Faith and there is nothing I wouldn’t give to have just one more minute of that. Beyond the hatred I feel for Beccah Beushausen, I feel for the people that put their hearts on the line, that prayed daily for a precious life that never existed.

In closing, I hope Beccah gets the help she needs, Lord knows, she needs alot of it.

But, any hell that coming clean has brought upon her, is fully deserved. You enjoyed your 15 minutes of fame but the fallout will last so much longer.

If you’d like to see some photos of a beautiful and very real baby, please go to Faith-Hope.com and see photos of a real sufferer of Alobar Holoprosencephaly.

All I can hope for now is that some genius doctors will be able to find a treatment/cure for the condition Faith was afflicted with, so maybe, someday soon, new parents and families won’t have to go through what we’ve gone through.

I just want to thank all that may have run across my blog over the last couple of months for all of their thoughts and prayers.

Maybe I’ll think of more to write about Faith, sometime after the tears have dried up …

• She has gained roughly 6 ounces since birth and is now an even 5lbs.
• She has gained a few inches in length and is now 19 inches long.
• She will be exactly 6 weeks old on Wednesday (41 days older than the doctors ever gave her a chance of being)

Now, the bad news:

The doctors tune has changed from visit to visit, but it seems its all just different notes of the same horrible song.

When the plates in little Faiths skull fuse, they say it will put pressure on the excess fluid in her brain that pressure will in turn push down on the brain stem to the point that it basically becomes dislodged and at that point, little Faith will then have taken her last, little breath.

Besides the fact that I think all doctors are a bunch of quacks, I just want to get the same exact story, more than once. It seems every visit, the doctors change things just enough for us to think they are even crazier than we already did. So please keep praying for Faith. More information here, as it becomes available.

A nurse has stopped by pretty much every day since she got home. On Saturday, they weighed her and she is down to 4lbs, 8oz. They say its normal during the first month for babies to lose a little weight. Faith is opening her eyes a bit more often and she enjoys when Grammy plays with her. She’s a beautiful little girl and every precious day that passes further proves the doctors wrong. Faith definitely has her mom and dads stubborn streak and I think thats going a long way towards beating the prognosis handed to us.

I’d also like to ask for your prayers, because if we are to believe the doctors, little Faith Hope won’t be with us for much longer. I’m far from being a doctor and will probably butcher the following information but the basics are … following tests yesterday afternoon and evening it was determined that Faith has nothing but a brain stem, and fluid where her brain should be. The doctors have given her little more than a day before the brain stem shifts or recedes, (something to that effect) and Faith Hope will no longer have the capabilities to keep her little heart beating, or to breathe.

The doctors have been wrong once already, trying to brace us with news that little Faith wouldn’t survive her first breathe and she beat those odds with flying colors, having a nice strong heartbeat right after she was born. We can’t help but feel like she can beat these seemingly unbeatable odds, as well. I just ask that you keep Faith in your prayers, helping us in asking God to bless this little miracle with more of a life than the doctors are predicting she will have.

The hospital determined that Faith could come home and today Mom and baby were discharged. The only explanation I was able to deduce was that in their minds, we can do just as much for her at home as they could do for her there, something they termed in the hospital as “Comfort Care”. To be honest, I feel like we do her a whole lot more good at home, surrounded by all the love a family could possibly give. Faith is already blessed with a large immediate family, as its my step-son who is Faiths father, she effectively has 3 grandfathers, and 3 grandmothers, 3 great grandfathers and 2 great grandmothers and 2 great-great grandmothers. Not to mention, a number of uncles, an aunt and more cousins than I could possibly count on both hands and feet, the majority of which have all paid at least one visit to see the little bundle of joy.

I will keep this post and possibly others, updated with news as it becomes available.